Re-posted here from 'Bringing Us Together'
Thomas Rawnsley, a young man with autism, Down’s syndrome
and learning difficulties, who was under the care of his local authority, died
on Wednesday this week (4/2/15). Thomas had been placed by the Court of
Protection in a specialist facility against his wishes and against the wishes
of his family.
His family had been fighting for 3 years to get him back
home. During this time, Thomas suffered abuse at the hands of care staff. His
story, documented here and here, is a terrible indictment of our care system and how
we treat people who have learning difficulties (LD) and are vulnerable.
It is not the first time this sort of thing has happened.
You can read here
about the sad death of Connor Sparrowhawk and here of Nico Reed, both in specialist care
facilities. Despite a commitment from the government in Transforming Care: A national response Winterbourne View
Hospital to ensure that all young people with LD are moved out of these
facilities and into appropriate placements in their communities by June 2014,
there are currently still 2,600 young people with LD in specialist facilities.
The LB Bill
is looking to introduce a Private Member’s Bill so that the law helps our young
people to stay in their local community.
However, many families have experienced, are experiencing
and will experience similar in the future. So as the wheels of change
move slowly, ever-pausing, in their journey to a world where our children and
young people are an integral part of our community, Bringing Us Together and
friends wanted to try to do something to help
Justice Together
We know that there are many people and organisations out
there with knowledge, experience and advice to offer to families in this kind
of crisis, but often the family do not know they exist, so their support comes
too late or not at all.
Bringing Us Together and friends want to produce a database
of all the support available to families who need help when they are in
crisis; whether their child is detained against their will and the will of
their families, or if they are involved in a safeguarding incident with a
provider/educational provision or if the families themselves are victims of the
system.
Short Term Goal:
To produce and provide a database of ALL support available
to families.
Bringing Us Together will co-ordinate Justice Together.
Long Term Goal:
To provide as much support as possible to families of
children and young people with disabilities who are in crisis
Where possible, to provide resources and support to stop the
progression of crises that lead to any form of deprivation of liberty
To raise public awareness of the issues relating to any form
of deprivation of liberty and other safeguarding issues for people with
disabilities
We will use the knowledge and information to raise awareness
with families.
Informed parents will be able to make informed choices and
decisions.
Outcomes
Children and young people with disabilities will not die
following any kind of detention in state care
Children and young people with disabilities will not be
detained against their wishes/the wishes of their families in inappropriate
state funded facilities
Good quality community placements will be found for children
and young people with disabilities who are at risk of any form of detention or
are in crisis
Children and young people with disabilities will be
acknowledged as “reliable” witnesses
How will it work?
Bringing Us Together will co-ordinate Justice Together.
In time, and with funding, there will be regional Justice
Together Co-ordinators.
Regional Justice Together Co-ordinators will put together
and maintain databases of people in their region with skills and knowledge, who
are willing to assist Justice Together on a voluntary basis
Regional Justice Together Co-ordinators will put together a
list of good quality providers in their region
Regional Justice Together Co-ordinators will deploy their
team of appropriately skilled and knowledgeable volunteers who can quickly come
together to provide advice, guidance, advocacy, emotional and practical support
to the family in crisis
For families heading towards crisis, the same will be
available but on a smaller and less intensive scale
How can you help?
Can you offer support to a family? If so, what experience do
you have and which local authority areas can you offer the support in?
Do you have experience with fundraising or grant writing? We
would like key people offering support (e.g. Regional Co-ordinators) to be
recompensed, and we are seeking to cover all volunteer-related expenses, so we
need funds to do that.
Do you use social media or do you blog? We need people who
can share news and information. We need to make people aware of Justice
Together.
Do you know the providers in your local area?
Do you have expertise in a specific area (such as advocacy,
psychology, social work, health, etc) that you are willing to share with
others?
Do you have technical expertise to offer for databases, SQL,
etc.
Ideas and suggestions
What would make Justice Together work in your area?
What else do you think we need?
Do you know of others doing this on a local level who would
be happy to get involved?
Can you share this with any friends or colleagues who may
want to go on the database?
Can you recommend a local or national organisation that
provides support to families?
We don’t want to replicate any good work happening in local
areas, we just want to ensure that parents know about and can access that help
before it is too late.
Expressions of Interest and Suggestions:
In February, we are asking for feedback and expressions
of interest. If you would like to be involved with Justice Together or if you
have a suggestion, please complete this form at the end of the linked page by 28 February 2015.
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