Lucy is a delightful 5 year old who has just started at
Bright Futures School this September.
Her parents have given permission for me to blog about and to publically
share footage of some of the work we do with Lucy at school – I am very
grateful for this (thanks Rachel and Paul) and very excited to have Lucy at our
school……not only because she is lovely, engaging and has a great sense of fun
but also because working with her will present us with an opportunity to work with
a very young child, and to document her (and our) progress on our social
communication journey together starting from very early developmental
milestones.
Lucy is quite different to our current cohort of pupils –
our other pupils are verbally articulate and have mastered the basics
of social interaction: joint attention; co-regulation; social referencing;
experience-sharing.
Lucy has some functional speech but hasn’t yet fully mastered the
crucial competencies above, which, in typical development, we would expect to
be mastered at between 9 months to one year.
She is still very much ‘on her own agenda’ and is unaware of the needs
of her communication partner/s. She does
not generally look to communication partners for information that can help her
work out what to do when faced with uncertainty.
Here is some footage of my second session with Lucy. I had observed her working with another
member of staff previously so had an inkling of what to expect. My mental goal when I went into the session
was to join Lucy in whatever activity interested her and to try to establish a
simple turn-taking pattern.
We knew that she liked toy animals so we had those available
on the table.
You can see from this footage that Lucy doesn’t orient to me
when I use her name. Neither does she
pay attention to the noise of the lion that I am trying to share with her. She is unable to co-regulate by making the
noise of the horse (the noise may be too difficult for her or she’s not
interested in making animal noises).
Lucy puts the horse on the floor and then takes my lion (breaking the
co-regulatory turn-taking pattern). I spotlight to
her that it’s my lion and hold out my hand but this doesn’t register with her. She becomes distracted by the pictures on the wall and
identifies Nemo. I remind Lucy that the
horse has gone on the floor and this seems to re-gain her attention – she puts
the lion on the floor. I quickly take
control of the animals so I can put a turn-taking pattern in place. Sarah and I take our turns and Lucy picks out
the giraffe to put on the floor. We take
turns again and then Lucy picks out the mouse.
It’s lovely when Lucy initiates sharing emotion around the
mouse noise: ‘eeek, eeek’. She has
remembered this from her last visit, and she does reference me around this, which
is good. It’s clear that Lucy’s
receptive language is ahead of her expressive language – she has no trouble
responding to me when I ask her to sit more stably in the chair. The rest of the session after the clip ends continues
with us taking turns to place toys on the floor and then taking turns to put
them back in the box. We do try out the
books and some other toys but Lucy wants to stay with the putting and placing,
so we go with that.
I wasn’t sure where to go from here so I did what we all
do/need to be able to do when in a state of uncertainty – I referenced someone
who I trust……my fellow RDI Consultant, Sharon.
Sharon works with Bright Futures School to support some of
our staff in their ‘guiding’ (RDI) training, as well as mentoring my guiding
(RDI practice). She is very experienced
and highly intuitive (much more so than me) about using the principles and
practice of RDI.
Sharon suggested that we start right at the beginning stage
of co-regulation with Lucy – a stage that in RDI, is called ‘synchronous
co-regulation’. Here is Sharon’s
guidance:
Synchronous Co-Regulation refers to an important component
of synchrony, involving feeling one's bodily connection with others. Through
joint synchronized, rhythmic & patterned movement we pleasurably experience
ourselves and others functioning as a single entity.
So what does that mean?
With babies they are rocked & gently bounced to soothe them. As they get a little older parents/carers
will use movement & nursery rhymes whilst adding anticipation i.e. with
Humpty Dumpty the child will be on the carer's knee, anticipation will be added
before they are dropped & pulled back up again. In Ring-a-Roses
anticipation will be added before the 'all fall down'. Before a child is
picked up, movement will take place i.e. holding out arms to child, child hold
arms out to parent... anticipation can be added before picking the child up by
pretending they are too heavy to lift etc.
Where can we take this?
Find & use Lucy's favourite
nursery rhymes. Do those action songs in which there is body contact i.e.
as above or ‘Row Your Boat’, 'This is the Way the Ladies Ride', 'Round &
Round the Garden', 'This little Piggy', even 'Peek-a-boo' with just hands to
begin with....any others you can think of. Add anticipation in whatever
you use.
Although the above are without objects I also wonder how
successful using bubbles would be.... most kids love bubbles! If using these,
I would suggest that either you direct Lucy to sit on a chair, or on a mat/cushion
on the floor, before blowing. Build anticipation around a pattern of you
blowing & Lucy popping but each time before you blow, have her sit back on
the chair/mat/cushion before you start the pattern again.
With any of the above we are looking for Lucy to recognise
that she has a role to play.
So with this in mind, I went into my next session with Lucy
armed with a list of nursery rhymes and early years action songs (it’s a while
since I’ve used any of those!).
We are now in Lucy’s room at school. Distractions have been minimised and we have
started off again with the game of throwing the toy animals. Lucy had thrown 4 animals so I pick out 4 to
throw. I build anticipation by giving ‘ready,
steady, go’ a shot and it pays off with Lucy co-regulating by saying ‘go’ when
I pause. She comes in with ‘go’ again
with the dog and I make sure to throw as soon as she says this so that we are
building up a co-reg pattern. We repeat
this with the cat and then with another dog where she whispers ‘go’.
I try out ‘The Wheels on the Bus’ and I’m really happy to
see Lucy co-regulate by joining in on the actions to the horn, chatter (bit of
a tricky manoeuvre but she approximates it by moving her hand), up and down,
wave and repeat horn. This is great as we
are establishing a connection :)
I do Incy Wincy Spider and on ‘rain’ she does a ‘washing
down’ action and follows it with a 'climbing up the spout' action. I celebrate by clapping and it’s lovely to
see Lucy join the ‘we did it’ celebration.
So….we’re really happy with these little bits of co-regulation
and connection as they give us a great base to build from. As Sharon said, slow and steady for now
whilst we build up trust and get to know each other. We’ll add in ‘just noticeable differences’
and variations as we get to know Lucy’s edge of competence. We don’t want to tip her over into withdrawal
if the challenge is too big and we need to make sure that the activities we are
using as the vehicle for our ‘goal beneath the goal’ (our developmental
objectives) are activities that she is interested in and in which she has a
competent co-regulatory role to play.
Over the coming weeks I’ll share some footage of other staff
working with Lucy too. I hope you enjoy
joining us in our developmental journey.
To all involved: Thank you so much for sharing. I love the brave 'step back' approach!
ReplyDeleteGlad you liked it. More coming soon!
ReplyDeleteZoe, Sharon, Lucy and parents, thank you so much for sharing. It was great to see how you took on board what was evident in the first video as 'too overwhelming', 'distracting' etc and quickly adapt to create a more optimal environment for learning. It reminds me to refer more people to your blog, Zoe, expect some increased traffic in the weeks ahead :-)
ReplyDeleteThanks for the positive feedback :) More traffic always welcome!
ReplyDeleteThese are really interesting - enlightening - videos, thank you (and Lucy and her parents!) for blogging about them. My son is autistic but very high functioning and (generally) articulate; I can see in Lucy's behaviour some of the problems he must have had, and still does, in co-regulation and connection. Sadly, although he was diagnosed fairly early (at age 4) it's taken until now (8 in March) to build up everyone's knowledge and understanding. We basically missed opportunities when he was Lucy's age to try these kinds of activities which I think would really have helped to lay the foundations of social behaviour for him; and now he would find them boring and babyish and wouldn't want to play along. So much that we take for granted and teach NT children by instinct is so difficult for the lay parent to put together into a manageable lesson for an ASC child!
ReplyDeleteThanks Fledge :) I think you're right about this type of activity being inappropriate for an older child/young person......but there are other, more age appropriate activities that could be used as the 'vehicle' for working on social communication. With older kids at school we use a lot of cooking/baking; craft and woodwork; board games etc. There is an online summit coming up in Feb run by the Connections Centre (RDI HQ) that will feature presentations and webinars on working with different age groups and different profiles of autism. Might be useful? http://www.rdiconnect.com/project/rdi-autism-summit/
ReplyDeleteThanks that looks really useful, I'll keep an eye out!
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