Here is the second of three letters going to the Chief Exec
of NAS. This one is about the young
people with autism whose families are fighting to get them out of inappropriate
placements.
Dear Mark
I write to share my concern about the incarceration by
statutory bodies of children, young people and adults with autism in
inappropriate settings and to seek action by the NAS to challenge this
practice.
Children are often being put in residential placements, hospitals
or Assessment and Treatment Units that are hundreds of miles away from their
families and are also too often run by organisations who apply policies and
practices that fail to take account of the young person’s autism, thus making inappropriate,
sometimes damaging, provision for the young person placed in their care.
You will be familiar with the current cases of Josh Wills,
Stephen Martinez, Thomas Rawnsley, Claire Dyer, Jack Beres, Nicole Longhorn,
Dave Ashby and Chris McCarrick – all young people who have been placed at great
distances from their families and/or in placements that do not appropriately
understand and support their condition of autism.
I am aware that the NAS campaigns to improve services for
children and young people as well as adults. However, I believe that in
cases such as those cited above - when some of these young people have suffered
abuse as a result of their placements; when their human rights are being
neglected or abused; when they have been detained under the Mental Health Act
when in fact they are not mentally ill, but autistic - there is an
imperative for the UK's largest autism charity to use whatever means possible
to proactively support each of these families in their efforts to secure the
release of their children and find alternative person and family-friendly supported
living solutions.
The NAS has caseworkers.
It has access to a legal network as well as access to politicians and
other key influencers. It helped bring about the Autism Act. It is
surely now time for the NAS to put the Autism Act to the test. The NAS is the
organisation best placed to support families to bring legal challenges against
health or social care bodies for being in breach of their statutory duty to
provide appropriate services for children and adults with autism.
What is NAS doing to directly support each of the above families
in their struggles to secure appropriate placements for their children?
End of letter. Any
response will be published as soon as I receive it and if you want to write to
NAS to raise your own concerns about this please do so. The Chief Exec’s email address is mark.lever@nas.org.uk
Aspergers no longer appears in the DSM, yes that's true, but there are still lots of people with autism who self-identify as Aspies or having Aspergers.
ReplyDeleteI don't think I used the term 'Aspergers' in the above post, although I have used it in others and will continue to do so when referring to people who self-identify as having Aspergers.
Re your comments about psychiatry - I never alluded to my personal views about psychiatry, nor did I mention psychiatry in the blogpost....so I'm a bit confused as to the reason for your comments. I do agree with your concerns about psychiatric drugs.